The Global Hip Dysplasia Registry (GHDR) was established in 2016 with 16 hospitals from North America, Australia, the United Kingdom and India with the aim of creating a prospective registry to identify best treatments and outcomes for developmental dysplasia of the hip (DDH). GHDR has since grown to include over 5800 patients enrolled across 40 contributing centres in 11 countries on 5 continents. However, the continent of Africa is yet to be represented.
There is therefore a need to establish the African arm of GHDR, first in Nairobi as the hub, before then inviting other institutions within the region. Information from the registry will be used to identify area variation in screening, diagnosis and management protocols across multiple centres and multiple surgeons, and the long term data used in comparative and prospective studies of the different treatment modalities.
Ultimately we will be able to identify best treatment practices and develop a novel understanding of the factors involved in the condition and determine trends in hip dysplasia that may affect functional status later in life.
The travel grant will facilitate a face to face meeting with the collaborator for in-depth education on the data required to be collected for the registry, the tools to do so, tutorials on accurate data entry and the basic statistical analyses of the subgroups from Sub Saharan Africa. In addition to this, the experienced research team at UBC will share ideas on further grant funding for the registry and subsequent sub-studies, and tips on regional networking to recruit more institutions to the GHDR.
The collaborator at UBC is Dr Kishore Mulpuri, paediatric orthopaedic surgeon, professor and head of orthopaedics at UBC, past president of the Canadian Orthopaedic Association, Principal Investigator of GHDR, Medical Lead of the Child Health BC Hip Surveillance Program for Children with Cerebral Palsy, founding president of the Canadian Paediatric Orthopaedic Group and the founder and chair of the I’m a Hippy Foundation.
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